I phoned Rachel, my Macmillan skin cancer nurse, yesterday. I haven't spoken to her in over a year but she remembered me well and we had a good chat. She gave me the results of the BRAF testing. My melanoma is positive for the braf mutation. That's a good thing - it widens my treatment options, should I get to that point.
I asked Rachel why they'd opted to test the original tumour. She said it's not for a clinical trial - there is no stage 3 trial available to me. It's more so they have the results if and when I become stage 4. How scary is that? But I know it's the logical approach to take and she did reassure me that they don't expect to need the results any time soon. She also said it's a minority of people with in-transit mets who become stage 4, not the majority as I feared.
So on I plod, hoping no more mets pop up (although Rachel did say she wouldn't be surprised if they did).
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