I found out that there IS a stage 3 clinical trial of vem for BRAF positive patients - http://public.ukcrn.org.uk/Search/StudyDetail.aspx?StudyID=13620
The exclusion criteria includes in-transit mets so that would seem to make me ineligible but I am considering emailing to ask with a view to applying for a place on it. I know I said I wouldn't, but I dunno. I haven't decided.
No new mets have popped up, which is good, but I can't help but have a horrible feeling of foreboding, like I am somehow due for one. Probably because there were three months between the two recurrences so now we're in August and another three months has passed, it feels like time. My skin is so freckly that it's really hard to tell what's what. A darkish brown spot has appeared at the edge of my wide local excision scar but it looks more freckle than melanoma (based on the black appearance of the two mets.)
I decided not to phone in for an immediate removal since I have my 3-monthly appointment with Dr Stewart on September 9th. I'll ask her to check it out. In the meantime, my lovely husband has agreed to full-body check me later on for anything that looks wrong.
I don't know. I can't shake this feeling that something's wrong.
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